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Kayla Michele Vittek
Born 8 weeks early: 7/28/05, 1:38 pm, 4lbs. 15oz.
www.babyKayla.com is moving to www.cureforkayla.com
My name is Kayla and I am a baby with special needs. I was diagnosed at birth with a rare congenital form of Myotonic Muscular Dystrophy and my doctors did not expect me to live to see my first birthday. I spent the first 105 days of my life in the ICU. For the first 9 months of my life, I needed the assistance of a ventilator to breathe but at 9 months old on May 1, 2006, I was finally able to start breathing on my own without any support. One year later on May 9, 2007, I had my trach tube removed. I was unable to eat by mouth for a long time but finally at 7 months old I was able to eat on my own and at 1 1/2 years old on March 14, 2007, I had my feeding tube removed. I have had a rough start but every day I make small improvements, thanks to lots of physical therapy and love and support from my mom, dad, family. friends and amazing nurses and doctors. Stay tuned for more journal updates and lots of pictures and videos. And don't forget to sign my guestbook. Someday when I'm old enough to read I'll look back on this and know you were here supporting me.
If you want to make a donation for Myotonic Muscular Dystrophy medical research, go to the "Our Links" button above and read about how you can help. Medical researches are on the cusp of a cure for MMD. Your donations will help get us one step closer. To contact my mom, email: lisa@global.t-bird.edu or my dad, email: jeff.vittek@yahoo.com
With Love & Hope, Kayla Michele
Last update: November 15, 2008 |
